In order for us to hear, sound is picked up in the cochlea (inner ear) but then has to travel up to our brains so we can “hear”. A “retrocochlear” problem is a problem with that transmission of info from the cochlea where it is picked up, that interferes with the signals getting to our brains properly. There are various reasons why we would have a retrocochlear problem. Did your Dr. do an MRI? Did they say it was an acoustic neuroma (a benign tumor)? If no MRI has been done I would seek a second opinion from an ENT doctor. I’m sure you are worried, so don’t feel scared to call your doctor and ask for more explanation, or ask the audiologist who did your testing to explain it more. A good website for info is

Sounds like you have a gene that turned on and decided to let your hearing degenerate. I have hearing loss but it is due to noise exposure over the years. I am going to have a middle ear implant very soon.

Is there surgery that could help you?
Have you been fitted for hearing aids?
It is probably best to take care of this as soon as possible.
If you wait too long, you will adjust to what your hearing at the time and not realize how much more you have lost.
Good Luck

I don’t know to much on the subject but I just wanted to say that I am very sorry. Try looking at Wikipedia.

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